Thursday 18 April 2019

Advocating for their needs

Last week I discovered that things with Randall's charges where heading a direction that would mean tragic things for Randall. Luckily for me his therapist pulled out all the stops and got an amazing team of people together to try to support him and make a plan that we could present to the court to show that this kid was going to be supported within the community. 

We sat down on Tuesday with Randall on Tuesday and tried to come up with some solid support plans and although we got no where in many ways it was so nice to have all these people advocating for my boy.  Standing up and being willing to work hard for him and for us so that he gets the services he needs. 

It breaks my heart that I can't just have him come home but home is so much easier and less stressful with him living somewhere else.  I feel as though that is the mantra of special needs parents everywhere as their high needs kids approach adulthood - I love you so much but I am tired and I need a break form the level of care that I have to provide for you so that you are safe. 

Why should parents have to get to that place of burn out? Why are there not supports for us before our kid is doing things like attempting suicide? Why could I not get any help for my kid until he was charged with a crime and potentially facing serious repercussions from a crime he doesn't not understand. 

In many ways the situation is the same for Kevin but he does not want me to advocate for him and we haven't heard from him directly or indirectly since he was charged last September. I am scared for him and I often want to reach out to him but I am afraid it will end badly and as result I have not said anything at all. 

There is no parenting book for this chapter of my life. 

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